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Thank you to the amazing people at namesinthesand.blogspot.com.
I used to be a mom of four. Then my youngest died at the age of 12 months.
Thank you to the amazing people at namesinthesand.blogspot.com.
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About Me
- 3/4 mom
- Northern Virginia
- My daughter Samantha was born on January 5th, 2008 with a VSD (Ventricular Septal Defect - large hole in her heart), that got closed via open heart surgery at 5 months. After that she needed a pacemaker to regulate her rhythm, but otherwise, we thought her heart was strong and healthy. As it turned out, she must have sustained some kind of injury to her heart either from the surgery or her pacemaker (or some unknown source). The injury went undetected for 6 months as her heart grew larger and weaker. She ended up in cardiac arrest on December 10th, 2008 and suffered severe brain damage as a result of the arrest. After spending 5 weeks in the PICUs at Fairfax and Pittsburgh and exhausting all other reasonable pathways, we ended up electing to withdraw life support. She died in my arms on Jan 18, 2009 at the age of 12 months. I have a wonderful husband ("hubby") and three other amazing kids: BL1 (born 2002), BL2 (2004) and BL3 (2006). I decided to start this blog as a way of dealing with my grief and trying to make some kind of sense of it all. I have a lot to say. I hope it helps.
she was beautiful- i am so sorry about what you are going through. we lost our baby boy silas (my husband is elmcitydad who is now writing on gitw) 10 hours after he was born this past september. it sounds like you guys have been through hell. writing on our blog has helped me to cope in more ways then you know- its a brave thing to start one, thats for sure. i never thought i'd be writing for the world to read. but just know that there is an amazing community out here. sending much love your way.
ReplyDeleteLani -
ReplyDeleteThanks for commenting on my blog. Ever since your husband's first post on gitw a few days ago I have gone back and read much of your blog. You are both amazing writers and have done a beautiful job of memorializing your son Silas. I have found reading and writing to be helpful as I go through all this and am so grateful for the supportive community that I am now discovering.